Helping You Navigate Life with a Chronic Illness
Helping You Navigate Life with a Chronic Illness
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Whether you have received a new diagnosis or have been living with your chronic condition for years, learning everything you can about that condition empowers you to be a productive member of your medical team. Here you will find the basics on a number of chronic conditions as well as information on the latest research and clinical trials in order to raise awareness and keep you up-to-date on the latest medical advancements and treatments for your condition.
Ehlers-Danlos syndrome (EDS) is a group of inherited connective tissue disorders that affect the structure and function of collagen, a protein that provides strength and elasticity to the body's tissues. EDS is characterized by symptoms such as joint hypermobility, skin hyperextensibility, tissue fragility, and abnormal wound healing. There are several types of EDS, each with its own specific features and genetic causes.
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a chronic and complex medical condition characterized by debilitating fatigue that is not relieved by rest and is worsened by physical or mental exertion. It is often accompanied by a range of other symptoms, including cognitive impairment, pain, sleep disturbances, and immune dysfunction.
Long COVID, also known as post-acute sequelae of SARS-CoV-2 infection (PASC), refers to a condition where individuals experience persistent symptoms and health issues after recovering from an initial COVID-19 infection. These symptoms can last for several weeks or months and can affect multiple body systems, including respiratory, cardiovascular, neurological, gastrointestinal, and musculoskeletal.
Dysautonomia is a broad term that encompasses several different medical conditions characterized by a malfunction of the autonomic nervous system. The autonomic nervous system controls involuntary bodily functions such as heart rate, blood pressure, digestion, and breathing. Dysautonomia can affect various parts of the body, including the cardiovascular system, bladder, gastrointestinal system, and more. Common types of dysautonomia include postural orthostatic tachycardia syndrome (POTS), multiple system atrophy (MSA), and neurocardiogenic syncope (NCS).
Fibromyalgia is a chronic condition characterized by widespread musculoskeletal pain, fatigue, and sleep disturbances. It is often accompanied by other symptoms such as cognitive difficulties, headaches, and mood issues. The exact cause of fibromyalgia is unknown, but it is believed to involve abnormalities in the central nervous system.
Lupus is a chronic autoimmune disease where the body's immune system mistakenly attacks healthy tissues and organs. It can cause inflammation and damage in various parts of the body, including the skin, joints, kidneys, heart, lungs, brain, and blood cells. Lupus is characterized by periods of flares, where symptoms worsen, and remissions, where symptoms improve. Common symptoms include fatigue, joint pain, skin rashes, fever, chest pain, hair loss, and kidney problems.
Rheumatoid arthritis (RA) is a chronic autoimmune disease characterized by inflammation of the synovial lining of joints. It causes pain, swelling, and stiffness in the joints, typically in a symmetrical pattern. RA can lead to joint damage, deformity, and disability if left untreated. It is a systemic disease, meaning it can affect other organs and systems in the body.
Sjögren's syndrome is a chronic autoimmune disorder that primarily affects the exocrine glands, particularly the salivary and lacrimal glands. It is characterized by lymphocytic infiltration of these glands, leading to dryness of the eyes and mouth (xerophthalmia and xerostomia). It can also involve other organs and systems, resulting in a wide range of symptoms and manifestations. Sjögren's syndrome is more common in women and can have a significant impact on quality of life. Early diagnosis and appropriate management are important for improving symptoms and preventing complications.
Ankylosing spondylitis (AS) is a chronic inflammatory disease that primarily affects the spine and sacroiliac joints. It is characterized by inflammatory lower back pain, morning stiffness, and progressive stiffness of the spine. AS can also involve other joints, such as the hips and shoulders, and may be associated with extra-articular manifestations, including uveitis. The exact cause of AS is unknown, but it is believed to involve a combination of genetic and environmental factors.
Mast Cell Activation Syndrome (MCAS) is a condition characterized by the inappropriate and excessive release of mast cell mediators, leading to a wide range of symptoms in multiple organ systems. These symptoms can include skin rashes, flushing, itching, gastrointestinal disturbances, respiratory symptoms, cardiovascular symptoms, and neurological symptoms. MCAS can be triggered by various factors, such as physical stimuli, stress, medications, infections, and environmental factors. Diagnosis of MCAS involves a combination of clinical symptoms, laboratory tests to measure mast cell mediators, and response to treatment with mast cell stabilizers or mediator-targeted therapies.
Diabetes mellitus is a chronic metabolic disorder characterized by high levels of blood glucose. It occurs when the body either does not produce enough insulin or cannot effectively use the insulin it produces. Insulin is a hormone that regulates blood sugar levels and allows glucose to enter cells for energy. There are different types of diabetes, including type 1 diabetes, type 2 diabetes, and gestational diabetes. Diabetes can have serious health complications if not properly managed, including cardiovascular disease, kidney disease, nerve damage, and eye disease.
Cancer is a group of diseases characterized by uncontrolled cell growth and the ability to invade and spread to other parts of the body. It arises from genetic alterations that disrupt the normal regulation of cell division and function. These alterations can be inherited or acquired throughout a person's lifetime. Cancer can affect any part of the body and is classified into different types based on the specific cells and tissues involved. It is a complex and heterogeneous disease, with various factors contributing to its development and progression.
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